Why Chronic Fatigue Syndrome, fibromylagia, cancer & more.

This blog is about the on-going challenge I'm having to finish the book about CFS (myalgic encephalomyelitis/UK) and several secondary diseases which can present as a result, i.e., fibromyalgia, depression, IBD, cancer (especially colon cancer), schizophrenia and Parkinson's, etc.
If you have followed the recent news that an American lab determined that the retrovirus, XMRV, was found in over 90% of people with CFS, although British and German labs have not been able to find this virus in CFS patients' blood, then you might assume that a cure is in sight. Vaccination is being talked about; the use of AZT (the same drug as HIV/AIDS patients take) is also being talked about, even though AZT can make a person who does not have AIDS very sick indeed. I tried to post my scepticism about the XMRV virus several times on the recent New York Times blog about the virus and CFS: I just mentioned that it is a well-known fact amongst CFS researchers that people with CFS are extremely prone to having antibodies to whatever virus is prevalent without actually ever coming down with a viral disease, and my comments got posted only once and were then quickly removed within a few days. So I doubt my that stating the non-viral cause is going to go down well either.

Thursday, February 11, 2010

CFS is caused by the food additive, carrageenan

Carrageenan is a particular, low-growing and clumping type of seaweed first described as being from the SW corner of Ireland, although nowadays the same or similar compound is derived from various seaweeds (which are actually more dangerous than the original).
Iceland, where the first modern researched outbreak of chronic fatigue syndrome - called Akureyri or Iceland disease - occurred during the immediate WWII post-war years had a long history of Icelanders eating seaweed when times were hard. As indeed all the far northern islands in this area also did. There is also a history of famines, starvation, of sickness, of sailors or other islanders washed up on the shores of various islands having no other option but to eat seaweed. It takes about seven years of eating seaweed before the acute phase of CFS to establish itself. Icelanders also used to regularly make a milk pudding just like a blancmange from a seaweed called dulse (dulse pudding) until recent times when Iceland got a lot richer. During the four to five WWII years, Akureyri as the furthest northern town in Iceland was almost completely cut off from the richer capital, Reykavik, and the American/British base which brought supplies in by plane and ship. The only road was mainly unmetalled; the distance between the two towns was about the same as the distance between London and Glasgow; fishing was severely curtailed as the Germans used this far northern route to get into the Atlantic from the northern German-controlled ports in Norway. So the Akureyrians started to eat seaweed in greater quantities than ever before. A year after the ending of WWII the first cases of Akureyri disease started to show up; it affected mainly children over six years of age; it affected the Akuryrians who lived in the town and who didn't have any land on which to grow food; Akuryrians who lived on farms hardly got this disease; 10% of the population became ill, some died; some developed Parkinson's disease and became permanently confined to wheelchairs. Again researchers looked for a viral cause but failed to find one. The only explanation is the eating of seaweed.

Tuesday, February 2, 2010

Is the XMRV virus really the cause of chronic fatigue syndrome?

The recent, October 2009, news that the retrovirus, XMRV, found in men with prostate cancer, has also been found in over 90% of Americans with CFS by the Whittemore Peterson Institute (funded by the NIH, the Nat'l Cancer Institute and the US Dept. of Defense) and thus posited as also being the cause of CFS, has me really concerned because (a) this correlation between the virus and the disease, CFS, has not been found in German and British labs; (b) the idea that a virus is to blame goes against previous findings by many reputable doctors that CFS patients never seem to get any viral infections and that they always have the antibodies to whatever particular virus is prevalent in the community (noticed first during the first well-documented CFS outbreak in the far northern town of Akureyri in Iceland in 1947-49. None of the people with CFS got polio - indeed they had antibodies to polio showing that they had encountered the virus and had developed immunity - which is surprising given that there was an outbreak of polio going around Scandinavia at the time. Remember that this was before the Salk vaccine for polio), (c) this could potentially be disastrous as already it has been posited that only the same highly dangerous drugs that treat AIDS will work against this virus, and (d), I have researched CFS for years and it is not caused by a virus. Indeed, research institutions such as the NIH, universities and hospitals working with a particular food additive derived from seaweed, carrageenan - have described and published most of the symptoms identical with CFS that this additive causes.