Why Chronic Fatigue Syndrome, fibromylagia, cancer & more.

This blog is about the on-going challenge I'm having to finish the book about CFS (myalgic encephalomyelitis/UK) and several secondary diseases which can present as a result, i.e., fibromyalgia, depression, IBD, cancer (especially colon cancer), schizophrenia and Parkinson's, etc.
If you have followed the recent news that an American lab determined that the retrovirus, XMRV, was found in over 90% of people with CFS, although British and German labs have not been able to find this virus in CFS patients' blood, then you might assume that a cure is in sight. Vaccination is being talked about; the use of AZT (the same drug as HIV/AIDS patients take) is also being talked about, even though AZT can make a person who does not have AIDS very sick indeed. I tried to post my scepticism about the XMRV virus several times on the recent New York Times blog about the virus and CFS: I just mentioned that it is a well-known fact amongst CFS researchers that people with CFS are extremely prone to having antibodies to whatever virus is prevalent without actually ever coming down with a viral disease, and my comments got posted only once and were then quickly removed within a few days. So I doubt my that stating the non-viral cause is going to go down well either.

Tuesday, February 2, 2010

Is the XMRV virus really the cause of chronic fatigue syndrome?

The recent, October 2009, news that the retrovirus, XMRV, found in men with prostate cancer, has also been found in over 90% of Americans with CFS by the Whittemore Peterson Institute (funded by the NIH, the Nat'l Cancer Institute and the US Dept. of Defense) and thus posited as also being the cause of CFS, has me really concerned because (a) this correlation between the virus and the disease, CFS, has not been found in German and British labs; (b) the idea that a virus is to blame goes against previous findings by many reputable doctors that CFS patients never seem to get any viral infections and that they always have the antibodies to whatever particular virus is prevalent in the community (noticed first during the first well-documented CFS outbreak in the far northern town of Akureyri in Iceland in 1947-49. None of the people with CFS got polio - indeed they had antibodies to polio showing that they had encountered the virus and had developed immunity - which is surprising given that there was an outbreak of polio going around Scandinavia at the time. Remember that this was before the Salk vaccine for polio), (c) this could potentially be disastrous as already it has been posited that only the same highly dangerous drugs that treat AIDS will work against this virus, and (d), I have researched CFS for years and it is not caused by a virus. Indeed, research institutions such as the NIH, universities and hospitals working with a particular food additive derived from seaweed, carrageenan - have described and published most of the symptoms identical with CFS that this additive causes.

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Any reasonable comments - even if diametrically opposed to mine - are welcome