Why Chronic Fatigue Syndrome, fibromylagia, cancer & more.

This blog is about the on-going challenge I'm having to finish the book about CFS (myalgic encephalomyelitis/UK) and several secondary diseases which can present as a result, i.e., fibromyalgia, depression, IBD, cancer (especially colon cancer), schizophrenia and Parkinson's, etc.
If you have followed the recent news that an American lab determined that the retrovirus, XMRV, was found in over 90% of people with CFS, although British and German labs have not been able to find this virus in CFS patients' blood, then you might assume that a cure is in sight. Vaccination is being talked about; the use of AZT (the same drug as HIV/AIDS patients take) is also being talked about, even though AZT can make a person who does not have AIDS very sick indeed. I tried to post my scepticism about the XMRV virus several times on the recent New York Times blog about the virus and CFS: I just mentioned that it is a well-known fact amongst CFS researchers that people with CFS are extremely prone to having antibodies to whatever virus is prevalent without actually ever coming down with a viral disease, and my comments got posted only once and were then quickly removed within a few days. So I doubt my that stating the non-viral cause is going to go down well either.

Wednesday, September 15, 2010

CFS meetings cont'd

I got cut off the last time I wrote and so continuing the problem I had with CFIDS meetings. I remember one young man who came quite often. We often had to help him walk out; he was tremendously dizzy; his pupils would enlarge and then contract rapidly. I felt really bad that I had no chance to help him; to say do not take food with carrageenan in it.
I decided that I had had enough; that it was wasting my time and energy when the woman in charge told me as though she were imparting something of tremendous import, that chronic fatigue syndrome was "a gift from God", and I thought then that with a friend like that one didn't need enemies - that she wasn't interested in a rational basis for CFS. She was invested in keeping the status quo no matter the cost to anyone else.

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