I got cut off the last time I wrote and so continuing the problem I had with CFIDS meetings. I remember one young man who came quite often. We often had to help him walk out; he was tremendously dizzy; his pupils would enlarge and then contract rapidly. I felt really bad that I had no chance to help him; to say do not take food with carrageenan in it.
I decided that I had had enough; that it was wasting my time and energy when the woman in charge told me as though she were imparting something of tremendous import, that chronic fatigue syndrome was "a gift from God", and I thought then that with a friend like that one didn't need enemies - that she wasn't interested in a rational basis for CFS. She was invested in keeping the status quo no matter the cost to anyone else.
Wednesday, September 15, 2010
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