CFS meetings - a waste of time

Apparently half of my blog got cut off. Well, I started going to CFS/CFIDS meetings when I first came back to the US. They took place at a meeting-room at a local hospital. After several meetings I wrote and printed up a synopsis of what causes and happens when you ingest carrageenan and ultimately get chronic fatigue syndrome. Unfortunately the concept was too difficult for the person in charge of the local chapter to understand (part of the problem is tha CFS can make even reading something very difficult; and understanding new, scientific material almost impossible. I'll never forget her look of unbelief; of incomprehension. I was not allowed to hand the leaflets out and most definitely not allowed to even speak for even five minutes at the end of a meeting. The woman had no qualifications of any kind to run such a group except the willingness to start a local chapter. It's a phenomenon I've come across before: and contrary to that old saw:- In the land of the blind, a person with one eye is king - in my experience such a person is more likely to be shunted aside and ignored. In a more uncivilized society, stoned!